One of Our Friends Died Today

It has been a couple rough weeks. Cynthia is depressed, the chemo isn’t working, and now she talks about coming home and letting it take its course. She cries more now than before. This morning she cried in the shower because her skin is coming off, in the areas where the cancer is. She says she is falling apart. I tried to calm her by saying to her: imagine a sunburn and the skin is peeling. The dead skin falls off eventually. But it didn’t help. The pain is sometimes unbearable unless she takes the strong pain medicines. That helps the pain but she feels like sleeping all day and gets nauseous from it. Let’s not forget the side effects from the medicines. Diarrhea, vomiting and constipation. That all depends which medicine she uses that day. She is...

Back from Hospital

Cynthia was able to leave the hospital this morning at 6 am. They gave her some pain medications, HydroMorphone and a new one called Methadone, which is for long term pain control. The HydroMorphone is every 3 hours as needed and the Methadone is every 12 hours, no matter what. So now she is feeling much better. Tomorrow she has NEEDLE ASPIRATION BIOPSY at 10 then at 3 she has ECHOCARDIOGRAM. On Tuesday, she has the doctor appointment to start her new trial. Update will follow.

Update

Hi this is Paul updating Cynthia’s blog. Chris came to visit for 10 days. Loved it!! Especially Cynthia as her only family here is myself and that hurts her that the family is so far away. No one else to go to, to share her feelings or for comfort. She could use the phone but its not the same as in person. The last time she wrote was to tell you about a new trial they wanted to start last week but it didn’t happen. We had asked to see a breast doctor, specifically an IBC doctor. We got an appointment with Dr Moulder, a breast oncologist and clinical trial doctor. She is the one who would of administered the new trial. We asked for an IBC doctor oh well. We went to the patient advocate to try to arrange a visit to the IBC doctor. Patient advocates are usually...

New Address and Phone Number

Just to let you know my new address and phone number at the apartment. 713.609.9035 house phone 832.212.2904 mobile 8181 Fannin apt 416   Houston, Texas 77054 Christopher is coming today. We might be going places since I don’t have any appointments this week. Next week new chemo trial for me. Two chemo on Wednesday and one on Thursday. Praying it will work this time around. The spreading now is underneath my left eye and it is swollen on my cheek. The rest of the infected skin is hurting my back, stomach and neck. It feels like stabbing pains. Now my right arm starts to swell up aswell. I got a sleeve and glove yesterday to keep the swelling down. Well this week I know I will have fun and take some pictures. The weather is sunny here. Good time to get...

Thank you

The biopsy they did on my skin lesions were infected as I knew it would be. Doctor Naing stopped the trial today for me. I also had an appointment with the breast oncology Doctor Moulder. She wants to put me on another trial. Phase 1 study of Bendamustine and Bevacizumab combined. Both of these chemos are FDA approved but have never been tried together. Chemo every two weeks. Lets hope that this is the one I need. This drug will attack the blood vessels and the other one attacks the tumor cells. Yes also my good cells.:-( But I’m strong so it will be fine. Right now I have to wait about two weeks before they can start. One week is already over so one more to go. Here is a link to the page that describes what these chemos do:   There is not a whole lot...

Cancer in the Skin

Last week they raised the dose of Benadryl to 50mg for my hives’ that I get from the chemo from head to toe. They ask Paul to stay with me cause it will make me real drowsy. I have to be different right. I didn’t feel drowsy like they described to me. All I know was my itch was gone…what a relief. Friday I started to have some runny nose and when I woke up at the middle of the night my throat was soar. I think that Paul gave this to me. He was coughing a lot last week. I know he likes to share everything with me but this one he could of kept to himself. I am now on antibiotics again, as it got to be a bad infection for me. Still coughing but feeling better today. Saturday they did a Ct scan on me and couldn’t find my vein as always I don’t have to many...