Itching

We arrived in Amsterdam on Tuesday morning and stayed with Melanie until this past Friday. Paul arranged some friends to come and see me. It was really nice he did that. I dont think I could of visited them. Still a little weak. Although I felt better. Not sure how to describe it. Not sick from the chemo. On Friday we went to my parents house. Saw a good friend Annemie and her friend, Jan. My sister and her boyfriend and Onida also came to visit. My sister was also there with Onida when we took off for our drive to Hirsthals Denmark. It was sad to leave everyone. It was such a long drive. The itching never stopped. Poor Paul, he rubbed my back when he could, which was quite a bit of the time. Traffic was good all the way up. We are now in the Skaga hotel packing...

IBC Interview

Here is an IBC interview. Please share, tag, post, twitter, or get on the phone and call those folks who don’t have fb. This is an important interview and we need people to hear this. Thank you again Dr. Ueno for your support and generous nature to those fighting IBC. part one, http://www.youtube.com/watch?v=Iu9VyJlxdbQ part two, http://www.youtube.com/watch?v=CZBxIQP8b5Q&feature=share part three, http://www.youtube.com/watch?v=oNX4HyWZh74&feature=share Please share these on your facebook so the word gets out. Thanks, Cynthia and Paul

Going Home, Continued

On Tuesday pulmonary drained her lungs. They took out about 750ml of liquid. It seems like it needs to be done about every 3 weeks now. I hope they know how to do this in Norway because it will be a regular occurance. An xray then the drain and xray to check if its empty. I think I better look for a private clinic. Not sure if I trust getting this done on a timely basis. Too much fluid in her lungs could cause pneumonia. We are going home on Monday, or actually flying from Houston to the Netherlands. Stay a few days there then the drive back to Norway. I hope she can handle the trip ok. Its a long flight and unless we get lucky and get a business upgrade, she will have to sit the whole time. She normally needs to lay down to help control the pain. I have asked for...

Going Home

Short update because Comcast reliability is only 50% of the time as I write this from my iPhone. Never pick Comcast in Houston. Cynthia has decided to go home. Tomorrow when I can access better Internet I will make the arrangements for next week to fly back. I will write more later. Paul  

No Cure

Today Cynthia had an appointment with the oncologist. Cynthia brought up the point of wanting to go home. She is getting weaker and we are not sure if its the medicine or not. It could be making her drowsy where she sleeps all the time. Shes peaceful when she sleeps. He told us that 2 weeks on this trial isn’t really long enough to tell if its working yet. He asked her to wait another week and we will see him again and discuss it. If she feels she is getting weaker and its not working, he will recommend she go home. They were also suppose to take her port out tomorrow and put a power port in. That has been changed too. She doesn’t want it. She says she doesn’t want anymore chemo so there is no need for the port. Unless the doctor can convince her...

No Need Pain Medication

Hi ya ├íll gee sounds like I am becoming southern haha. Today Cynthia hasn’t been too bad. Not that she is bad but the pain is bearable. She did not need any pain medication from what I have seen. She does lay on the couch and sleeps alot though. Most of the time dozing off. I cooked today again. Not bad as she tells me how to make some things. I think she is preparing me. Also talked to the kids today. Chris will leave Lebanon soon and come to Norway to see us once we get back. We are waiting patiently for next weeks appointment. Mary and Kelli are coming to visit us on Sunday and stay till Tues. Just in time for the news from the doctors. The Rodeo is also going on, haven’t been there yet. Hoping Cynthia will feel good enough to go one time. Its...