IBC, Not Typical Breast Cancer

This is Paul. I just wanted everyone to know that Cynthia has stopped treatments in Houston. We are currently on our way back home to Norway. She has decided for now quality of life over misery and sickness. I could not say this before but now the family knows so its OK if others know this. The trials she tried were either not working or it was making her very sick and weak. She was scared that if she became too weak and caught something like pneumonia, she would not be strong enough to fight it. That is what happened to our friend Mike, who was also getting chemo for leukemia. He got very weak, somehow got pneumonia and only lived for a couple days before he died. She did not want that to happen to her there in the US with no family around her. Also just so you...

Going Home, Continued

On Tuesday pulmonary drained her lungs. They took out about 750ml of liquid. It seems like it needs to be done about every 3 weeks now. I hope they know how to do this in Norway because it will be a regular occurance. An xray then the drain and xray to check if its empty. I think I better look for a private clinic. Not sure if I trust getting this done on a timely basis. Too much fluid in her lungs could cause pneumonia. We are going home on Monday, or actually flying from Houston to the Netherlands. Stay a few days there then the drive back to Norway. I hope she can handle the trip ok. Its a long flight and unless we get lucky and get a business upgrade, she will have to sit the whole time. She normally needs to lay down to help control the pain. I have asked for...

Going Home

Short update because Comcast reliability is only 50% of the time as I write this from my iPhone. Never pick Comcast in Houston. Cynthia has decided to go home. Tomorrow when I can access better Internet I will make the arrangements for next week to fly back. I will write more later. Paul  

No Cure

Today Cynthia had an appointment with the oncologist. Cynthia brought up the point of wanting to go home. She is getting weaker and we are not sure if its the medicine or not. It could be making her drowsy where she sleeps all the time. Shes peaceful when she sleeps. He told us that 2 weeks on this trial isn’t really long enough to tell if its working yet. He asked her to wait another week and we will see him again and discuss it. If she feels she is getting weaker and its not working, he will recommend she go home. They were also suppose to take her port out tomorrow and put a power port in. That has been changed too. She doesn’t want it. She says she doesn’t want anymore chemo so there is no need for the port. Unless the doctor can convince her...

No Need Pain Medication

Hi ya ├íll gee sounds like I am becoming southern haha. Today Cynthia hasn’t been too bad. Not that she is bad but the pain is bearable. She did not need any pain medication from what I have seen. She does lay on the couch and sleeps alot though. Most of the time dozing off. I cooked today again. Not bad as she tells me how to make some things. I think she is preparing me. Also talked to the kids today. Chris will leave Lebanon soon and come to Norway to see us once we get back. We are waiting patiently for next weeks appointment. Mary and Kelli are coming to visit us on Sunday and stay till Tues. Just in time for the news from the doctors. The Rodeo is also going on, haven’t been there yet. Hoping Cynthia will feel good enough to go one time. Its...